Navigating Grief, Joy, and Resilience as a Medical Mama with Jillian Arnold

In this deeply moving episode, Jillian Arnold shares her journey as a mother to two children diagnosed with ASMD (acid sphingomyelinase deficiency), an ultra-rare genetic condition. She opens up about the complex emotions of parenting through medical adversity—balancing grief, finding joy, and building resilience. Jillian discusses advocacy, her new children’s book Soaring Together, and how storytelling helps other families feel seen. Her message is one of strength, community, and radical hope.