Living with Alexander Disease, with Amber Conn

In this emotional episode of Moms Like Me, host Jordan Arogeti talks with Amber Conn about her experience as a mother raising a child with Alexander disease—a rare and progressive neurodegenerative disorder. Amber opens up about the diagnosis journey, everyday realities, and how her community has come together to provide strength and support. It’s a story of advocacy, rare disease awareness, and parenting through unimaginable circumstances.