Feb 06, 2025

Life with Non-ketotic Hyperglycinemia (NKH) - A Rare Degenerative Genetic Disorder

Pregnancy Disabilities Caregiver
In this moving episode of Moms Like Me, Julia Erman shares her remarkable journey as a mother raising two children with non-ketotic hyperglycinemia (NKH), a rare degenerative genetic disorder, all while battling cancer herself. She discusses the highs and lows of her experience, from her children defying medical expectations to finding strength in faith and community. Julia reflects on the impact of social media in her advocacy, the creation of the Hazelnut Movement, and how she channels her struggles into inspiration for others. Her story is one of resilience, faith, and the unbreakable love of a mother. 

Related Content